Tuesday, November 23, 2010

2nd opinions...

At 5:15 AM I got up and showered as usual and headed out the door by 6:30.  That never happens, especially the getting up early part unless it's Black Friday then I'm up and outta there by 4!  Got some Starbucks for the road and met up with my sidekick sista Brooke.  That speaks volumes right there.  Anyone who would get up thaaat early for little ol' me must rilllly like me!  And even though we said 6:15 we both still both managed to be there 1/2 late but thank God despite the rain and the traffic we made it there and checked in at 8:55.  Thank you Jesus!

Met with Dr. Kline and after going over my history, symptoms and a physical exam I was pretty much told the same thing I was told by Dr. Chung- Stage 4 follicular lymphoma.  So much info was thrown at me, good thing I had Brooke with me, maybe she can recap what I miss here lol!  He needs some time to go over all the slides and cd's I brought with but said because I have no symptoms he thinks that we could just watch and wait, it's a slow growing cancer pretty much.  Unfortunately it's something I will live with for pretty much the rest of my life but definitely treatable.  Now for the treatment itself, why fix something if it aint broken?  I feel great and if we can watch and wait then why put me through the torture of chemo?  He said that there are some people that just can't bare to know they have this cancer inside growing and want to treat it right away.  The only question I had was how they figure I'm a stage 4.  To make a long explanation short it's because I have mulitple lymphnodes in two areas of my body and the cancer has spread to my bone marrow.  So anyway, the waiting continues but I still feel at peace.  However, I do kinda feel today that the pesky tumor is starting to bother me.  Nothing painful but when I move in certain directions I feel "discomfort" to put it lightly.  I also feel tired and felt a downward spiral about 2 PM, course it could be the tacos I had today for lunch!  Come on now, it's taco Tuesday!

So we were suprisingly in and out by about 10 AM and the bestie surprised me with lunch at The Signature room on the top of the famous Hancock Center.  WHAT A VIEW, despite the ugly weather.  I "highly" recommend it!  ;-)  I know I know bad joke!  Lunch was delicious and I couldn't even finish it but it made a nice dinner.  Then from there we went across the street to Water Tower Place.  Took her to the American Girl Place where I think she was a little overwhelmed to say the least!  It definitely takes you back to being a little girl.  Having two little girls of my own I know all too well how easily it is to get sucked into buying them the dolls, the clothes and the accessories.  From there we went to each floor, in search of a favorite store of ours Forever 21.... two floors oh my, I was in heaven!  I bought some jeans and stretchy pants.  And we also got scarves.  Some friends getting matching necklaces but we got scarves which we are both obsessed with.  About 3 we got a sweet tooth and couldn't resist the temptation of the dear old Chicago fav Frango mints.  Ah it's the little things in life!  Before you knew it was time to hit the road to beat the traffic and the brutal storm heading our way.  We cranked the iPod and sang our way home.  I am thankful for finding a doctor who knew what he was talking about, for a warm day in the city and for a friend who would cancel her day plans and get up at the butt crack of dawn for little ol' me to be my second set of ears and brain.  Sanks sis! <3

This past weekend was jammed packed but fun.  Saturday Mya had her competition then we had our talent show to raise funds for Feed My Starving Children (raised well over $2000 wowsers!) then I topped the night off at karaoke contest where I took second place out of about 10 contestants.  Not too shabby I suppose.  =)  Although I wish I could have taken the top prize.  Ah well.  Better luck next time!

Off to spend some time with the fam.  Good night and be blessed!

Friday, November 19, 2010

TGIF- Thank God I'm Free!

Happy Friday my beloved friends.  For those that know me well know I always have jammed packed weekends and this weekend is no different.  Tonight I am excited to get together with some amazing musicians and practice for the talent show tomorrow night and for our Sunday morning worship set.  Then after that I will head down the street, “LITERALLY” (that was for you Tania Runyan) to my awesome hairdresser’s house for a much needed haircut.  Thinking of doing something new with my hair!  J After that, who knows what the night may bring.  Maybe I will head to my favorite place and practice my songs for the dreaded karaoke contest I signed up for tomorrow night.  I have no clue as to who I’m up against, could get interesting!  Or maybe I will head home and just crash and get rested up for my very long day tomorrow.

Tomorrow is my daughter’s last cheer competition before the state championship at The Sears Center…go Spartans! Her team has already received a bid to state so this should be easy.  I’m keeping my fingers crossed that our youngest group of girls will earn a bid tomorrow.  Then from there I have to book outta there and head to the talent show.  My church is trying to raise funds to go towards a very worthy cause called “Feed my starving children”.  You can learn more about this incredible ministry and get involved by visiting http://www.fmsc.org/. Did you know a bag of food for $1.15 could feed 6 children?  Should be an interesting night (entertainment wise) to say the least, can’t wait!  And I just got an email from someone at the Chicago Tribune who will be there conducting interviews and taking pics.…. big things poppin’!  Sunday I will get my praise on and then just relax the rest of the day with my family.  Monday I head down to the University of Chicago to meet with a follicular lymphoma specialist.  I think I more nervous about being late than anything, I’m notorious for tardiness!  I picked up the slides from the pathology department at the hospital.  Too bad I can’t understand all the medical terminology in the reports.  So pray that I get there on time and that I can get some answers to the many questions weighing on my mind. 

Rant…. Hmmm you know to be honest I really don’t have anything to complain about today other than it’s payday but that my direct deposit had an “LOL” after it.  The money comes in and goes out even faster.  But what can ya do? I’m thankful for my job and my hard working hubby’s job even though he “despises” it most days.  I told him to be thankful that he has one.  He needs to be a godly example and a light to everyone he works.  One day God will open another door of opportunity for him to do something he’s compassionate about which is full time ministry.  Til then he must be patient and do the job he has. And I need to learn to be content that with what we've been blessed with and not worry about tomorrow.

Timothy 6:6-11 Now there is great gain in godliness with contentment, for we brought nothing into the world, and we cannot take anything out of the world. But if we have food and clothing, with these we will be content. But those who desire to be rich fall into temptation, into a snare, into many senseless and harmful desires that plunge people into ruin and destruction. For the love of money is a root of all kinds of evils. It is through this craving that some have wandered away from the faith and pierced themselves with many pangs.

 Have a very blessed weekend, be safe! 


Thursday, November 18, 2010

Turkey time is near!

I told my hubby last night "can you believe in one week from tomorrow we will be celebrating Thanksgiving?" It's hard to believe how fast the month of November went, let alone this year.  By this time next week many of us with be stuffing our faces with turkey, mash potatoes and pies galore.  To some, Thanksgiving is a day to be with family, to eat tons of food and to watch football.  To some its the one day out of the year that they really think about what they are thankful for.  For some it's just another day and to some it's a lonely day, not having any family and friends to be with.  What does this day mean to you and how are you spending it?  Instead of being thankful one day out of the year, try counting your blessings each and everyday!

Everyday I am grateful for my family, the family God blessed me with and the family I came from.  So to me, Thanksgiving is everyday, minus the turkey, pumpkin pie and the unnecessary added calories.  I was really hoping to go to Vegas to be with my parents but with all the weekly doctor visits, money and time has become an issue.  But it's ok, I will stay here with the incredible family and friends God blessed me with and host.... Maybe next year!

And my tradition of getting up at 4 AM to hit Walmart, Kohl's, etc. with all the other die hard bargain shoppers won't be happening... sad face!   If I really wanted to I could go rack up my credit cards and while my company would love me, my good friend "Sherry Debt Free" my ring my neck!  So the day after Thanksgiving I will sleep off the turkey coma, lounge around in the jammies for awhile, eat left overs (which always tastes better the second time around) and put out the Christmas decor- yes I like to wait, it's tradish!  Christmas has become too commercialized,  loosing the real reason for the season.  I want my kids to remember it's not about the gifts, it's about THE GIFT of a child who would someday give His life for you and I.  What a priceless gift. 

On to my rant!

So many of you know that I love, love, love scrapbooking and card making.  On Christmas Eve two very good friends of mine will be getting married and I have had the privilege to be a part of their special evening  in many ways but one way is that I hand made all 105 invitations for them. :) Last night I was down to the last 38 and I ran out of the silver ribbon that goes across the top!!  Argh!!!!  I just needed 4 more 4 inch strands!  Now why on earth did I not measure out how many rolls I would need from the get-go?  Don't ask.  So off to my second home Hobby Lobby I go after work, where they know me by my first name.  Oh and BTW, Operation Tri-Fold search- mission accomplished!  Snagged the second to the last one at the Walmart in Wheeling, hallelujah!  Oh the things we do for our kids.  Dear daughter decided to change her Social Studies project to The Addams Family.  And Dolly if you're reading this she plans on giving it to you as a Christmas gift lol!  ;-) 

Praise: I've been so encouraged by all of your sweet text messages, phone calls, facebook wall postings, messages and emails.  One email I got yesterday brought tears to my eyes.  It came from someone I've known for nearly 14 years but lost contact with and had heard from her sister about my diagnosis.  Her family lost their young niece last year to A.L.L. and she had said that right after the funeral she saw a rainbow and that it was confirmation from her niece that she made it home to be with Jesus.  She also seen a rainbow recently while thinking about her sister and everything she has gone through with the loss of a child and also from learning about my cancer.  She was so moved by seeing this rainbow that she got out of her car and dropped to her knees on the side of the road and began to pray. 

Someone else who is very near and dear to me has also seen rainbows recently. :)  Sometimes it's ok to be angry with God and ask him why, he can handle it!  She then saw a rainbow and immediately knew that was God's way of telling her that everything is going to be ok.  I am a firm believer that this is not just some coincidence but a true sign that God is real and he will show himself to you in many ways and that He is in control of all things!  Ezekiel 1:28- "Like the appearance of a rainbow in a cloud on a rainy day, so was the appearance of the brightness all around it.  This was the appearance of the likeness of the glory of the Lord". 

Have a great Thursday!  Be blessed!

Wednesday, November 17, 2010

Agent Orange

A good friend of mine from North Carolina called me this morning with some very interesting information (Thanks Mel!).  She first asked if my dad was in Vietnam during the war and I said yes.  She then called to tell me about a conversation she had with a friend and was telling her about me and my recent diagnosis.  She then sent me a link on facebook http://www.nhlcyberfamily.org/veterans.htm  So after I checked it out I sent my dad the link to look into it and he knew about it but is not sure if there is any genetic corralation.  In the meantime, you all know that I am easily intrigued and will do more research.  So far this is one interesting article through Wikpidia that I found:

Effects on U.S. veterans

Studies of veterans who served in the South during the war have increased rates of cancer, nerve, digestive, skin and respiratory disorders. Among the cancers veterans from the south had higher rates of throat cancer, acute/chronic leukemia, Hodgkin’s lymphoma and non-Hodgkin’s lymphoma, prostate cancer, lung cancer, soft tissue sarcoma and liver cancer. Other than liver cancer, these are the same conditions that the US Veteran’s Administration has found to be associated with exposure to Agent Orange/dioxin and are on the list of conditions eligible for compensation and treatment.[36]
Military personnel who loaded airplanes and helicopters used in Ranch Hand probably sustained some of the heaviest exposures. Members of the Army Chemical Corps, who stored and mixed herbicides and defoliated the perimeters of military bases, are also thought to have had some of the heaviest exposures. Others with potentially heavy exposures included members of U.S. Army Special Forces units who defoliated remote campsites, and members of U.S. Navy river units who cleared base perimeters.[41]
While in Vietnam, the veterans were told not to worry, and were persuaded that the chemical was harmless.[42] However, after returning home, Vietnam Veterans began to suspect that their ill health or the instances of their wives having miscarriages or children born with birth defects may be related to Agent Orange and the other toxic herbicides they were exposed to in Vietnam. Veterans began to file claims in 1977 to the Department of Veterans Affairs for disability payments or health care for conditions that they believed were associated with exposure Agent Orange, or more specifically dioxin, but their claims were denied unless they could prove that the condition began when they were in the service or within one year of their discharge.
By April 1993, the Department of Veterans Affairs had only compensated 486 victims, although it had received disability claims from 39,419 soldiers who had been exposed to Agent Orange while serving in Vietnam.[43]


If anyone has any info they would like to share please share!  In the meantime I guess I should get to work.  But before I do I would like to end my daily blogs with a rant and a praise! 

Rant: Last night had to make a trip to Walmart aka Wally World for a tri fold because Maricela has a Social Studies project due Friday (yes Friday, the procastination gene has been successfully passed down) and she had to pick someone or something famous for the 60's.  Of course everyone picked the good ones already.... The Beatles, The Flintsones, etc. so she picked the Rolling Stones which I think is a good choice.  Anyway, no tri-folds so off to Wally World in Wheeling I go! The trip last night wasn't a waste because I was out of laundry detergent but here's my rant.... I had just one item  so I automatically went looking for either the shortest line or the express check out.  Well not only did the person in front of me was well over the 15-20 item limit but has Christmas decorations that need to be wrapped individually AND has multiple orders?????  Why can't they read the sign that says express check out????  Why didn't I get out of the line you asked?  Well because the next register was way down yonder and the ones were long there too so I stayed there, in bondage, angry and annoyed.  You know I gave them the **side eyes** look as Suzy would say when I left.   Hey don't judge!  You know you would too especially if you had a long day and it was after 8 PM and you hadn't been home yet!  Ahhh, I feel better thanks!

Praise: On my way to work yesterday my heart just felt SO SO heavy.  Normally I start my day off by listening to Moody Radio or KLOVE and will worship in song all the way to work.  But yesterday was different.  I poured my heart out to God in prayer, what a great conversation we had.  I will share another day about some of the things besides my cancer that have been weighing on my heart.  Sometimes when we think we don't know what to pray or how to pray, the Holy Spirit takes over in full force.  I prayed about things that I didn't I wouldn't have thought of and I don't know how else to describe it but it felt great.  Some of you reading this might not fully understand or may think I am just crazy but I am!  I am crazy for Jesus!  The bible speaks a lot on praying but here is one verse that fits perfectly:

Romans 8:26- Likewise the Spirit helps us in our weakness. For we do not know what to pray for as we ought, but the Spirit himself intercedes for us with groanings too deep for words.

I think I am going to love this blogging thing!  ;-)

Tuesday, November 16, 2010

Giving this blogging thing a try!

So with all that's going on in my life I thought I'd give blogging a try vs. emailing everyone updates on me.  So here it goes!

For those that didn't get an email a few weeks ago or did but are kinda lost here's a recap: August 23rd I went for my annual check up with my ob/gyn.  I am a firm believer in going in for these embarrassing but life saving check ups.  This was the beginning of something that would change my life forever.  The following week I went for an ultrasound and they found a large (10cm/4 inch) "mass" in my abdomen.  At the time they couldn't tell if it was in my uterus or not.  Either way I felt fine and to this day I still do.  The week after that I was scheduled to have a laparscopy to be able to look at this large mass up close and personal.  Well "it" was no where to be found. 

After receiving that news from Dr Milam, I was asked to go get a CT scan done because he knew what he felt and knew it was there but where?  Went for a CT Scan and a few days later received confirmation that it indeed was a mass aka tumor.  A scary word to hear to say the least.  From there he referred me to Dr. Miller a general surgeon at Condell.  Made my appt, met with him and he showed me the large mass through the CT scans.  Then on Oct 15th I was scheduled to have a biopsy done.  They wanted to remove a smaller lymph node near the larger tumor.  He said he should have results by that Tuesday.  I was getting antsy when Tuesday came and went but tried to remain positive thinking that maybe they were just double checking their work.

Thursday around noon is when I got the call and it wasn't what I expected.  I was told that I had stage II follicular lymphoma and that I needed to see an oncologist.  An oncologist?  Isn't that a cancer doctor?  Do I have cancer, seriously?  It took a while to sink in that it was just that, that I have cancer.  Something I never imagined would happen to me. 

A week went by and I made my way over to visit with my primary care physician to again be told that I have cancer.  Then from there I went to Northshore Oncology in Libertyville, met with Dr. Chung who so far has been a great doctor.  Being the research geek that I am I have been doing research and Non Hodgkin's Follicular Lymphoma is typically found in older people, men mind you so Dr. Chung was a bit baffled.  She asked that I get a series of test done as well as another CT scan because while feeling out my neck she discover a lymph node in my left side of my neck.  She asked how long I've had it and I said I wasn't sure.  I felt it but just assumed it was a muscle or a knot of some sort.  Didn't bother me now before but now it does! 

So since that initial appt I've had a PET scan done, another CT scan and the worse test ever was the bone marrow test.  Without further explanation I'd rather give birth...enough said.  Got the results from those three test and the lymphoma has been detected in my bone marrow.  :(

So here we are.... the next step is that I meet w/a follicular lymphoma specialist on Monday 11/22 at the University of Chicago and also to participate in some upcoming clinical trials then we'll discuss treatment.  The doctors are just baffled because again this type of cancer is found in men 60+ so it's strange that someone like me, 32 y.o. overall really healthy and feels great would have this.

Thank you to all my friends and family that have been keeping me in their thoughts and prayers.  I find that I am doing well and feel so much at peace with everything and it's all because of everyone's prayers, seriously.  I don't know why this is happening to me and I won't ask.  God is doing something bigger than anyone knows or can comprehend and it's for a good reason.